Helpline: Advocating for your loved one’s care needs

Caring for someone with dementia means you’re constantly learning—how to navigate healthcare, manage family dynamics and balance work with caregiving. You quickly become an expert in so many areas, often without realising it. 

But how do you share that wisdom with others? And what happens to all that knowledge once your loved one passes? 

Sharing your experiences with other carers can be incredibly valuable, not just for them but for you as well. It helps you to connect with others and can give you a renewed sense of purpose. 

If you’d like personalised advice on how to connect with other carers, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day, or request a callback, start a webchat or send an email with whatever is on your mind. 

You can also listen to this episode of Hold the Moment to hear more stories of how other carers are sharing their knowledge. 

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Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios.  

Follow Dementia Australia on Facebook and Instagram or find support resources on our website. 

This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan. 

The National Dementia Helpline is funded by the Australian Government.   

Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. 

Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.